I had trouble posting my annual holiday update e-mail on this Gimpy Law blog in December. I thought it was a sign that I should wait until my post about my friend, Amber, who passed. But here’s my holiday update in case you missed it. If you want to be on my e-mail list, leave me your e-mail address below.
Happy Holidays 2016!
I hope this finds you well and enjoying the holiday season.
I love how the Cubs won the World Series after my family and I moved back to Illinois. Pure coincidence??
Able Community is well on its way to becoming a reality.
It’s been a tough year for me personally. Although I had chronic pain for a while now, I am losing some function—my ability to walk with assistance. It’s been especially hard on my family, who never fully accepted the fact that I had a disability in the first place. It’s funny how amazed people are when they discover I am able to walk at all; one law professor looked so stunned by me walking with my assistant down to the then inaccessible law school courtyard that I doubt I could have done anything academically to get a similar reaction.
I usually refrain from discussing my health to avoid seeming less capable (is it strange I think this?) and because I don’t want my friends to worry (I supposedly have a “normal” life expectancy, whatever that means). Don’t worry, I found some amazing doctors here, which is saying a lot because doctors and I usually do not mix well. As my PM&R Doctor said, the years of using my body in ways most people do not caught up to me. So, I guess it’s a part of aging with a disability. If anyone also has experienced increased tone with cerebral palsy, I’d love corresponding.
Also, in addition to missing friends who have passed away previously (I was waiting to update my newsletter with a post about Amber, my friend who passed away last year, but it’s been hard for me to do), I recently lost a dear former college professor, who was also my favorite poet. She put up with my endless e-mails although she was not fond of that form of communication and she helped me survive law school, even though she previously tried talking me into pursuing creative writing instead. Having said that, I encourage you to tell your loved ones that you love them while you can. I heard the act of saying something makes it more real.
My professor’s name was Brigit P. Kelly, if you want to read her books. I’m always surprised at how many people have never heard of her. Here’s her Amazon Author Page.
In exciting news, I am working on a legal guidebook regarding reasonable housing accommodations and modifications with Access Living and the Illinois Department of Human Rights. We hope it will enlighten housing providers in working with people with disabilities in Illinois.
I am hopeful that I can still squeeze some adaptive alpine skiing in this winter. Stay warm and drop me a line when you get a chance. I love hearing from you.
Esther S. Lee